Tuesday, September 24, 2013

Can't believe how fast time flies...


Can you believe it's been 4 YEARS? 4 Years since our lives were changed traumatically. This time of year I get excited for the change in weather and hoodie season and so much more but there is always an ache in my heart. Last week I started feeling emotional (I was mowing the lawn surprise surprise) and was thinking what is wrong with ME? Then it dawned on me...It's September...memories creep in and gratitude all at the same time.

It's crazy to reflect on where we were and where we are now. WOW!!! Our lives are forever changed and daily we are reminded of it. I watch my now 7 year old. Run, Play, Develop and Be HIMSELF. Which I truly admire. He is who he is. He is a typical 7 year old that most don't know deals with things daily others don't even think even myself. As I observe him going into a new class with new friends wondering WHAT HAPPENED? As well as learning to adjust his prosthetic throughout the day because it's not fitting right. But yet he doesn't complain...well at least not about that. He's 7 he complains about brothers and sisters and fairness and ALL the things a 7 year old should. 

Today as I reflect and even reread what happened (http://karsenmery.blogspot.com/2009/09/unfortunate-truth.html) while not wanting to trigger all the emotions I want to show gratitude. Gratitude for the fact that he has lived through it all. He's shown me strength, perseverance, love, hope and fearlessness. It has been inbedded in me as well. For so long I'd look down at my sweet boy and hate that FOREVER I will be reminded of that day as well as he is but now I look at him and think WOW if only he knew how much he means to me. How much he has taught me. How much strength he gives me. He will forever be my hero. I love him, his Dad and his siblings more then anything in this world. My hubby and I have some pretty great kids. This quote was posted and I found it PERFECT for my reflections on life today. Thank you again to all those that have been on this crazy journey. My Love and Admiration for you all is immeasurable.



Thursday, July 11, 2013

Screw Removal :) Surgery #??? I think we've all lost count

After just a short 7 months Karsen's bone bridge we made is all healed and today we removed his screw. It was helping hold a piece of his fibula in between the tibia and fibula to create a stable bone bridge. The hope in doing this is so as he grows he won't grow bone spurs and his fibula won't move around. Here is a picture of the before and after.


Here he is holding his screw. He said it looks like one from Dad's work!

 I was kinda surprised how big it was.

Here is the infamous Dr. Marci he lit up the minute he saw her. She puts him at ease when he is nervous and they adore each other. So glad we have her!!!

Had to take this pic. He didn't want to wake up he was in such a deep amazing sleep I was extremely jealous.


Every surgery always stirs up emotions for me and him but we push through. He should be back walking in a few days. He's already hoping & crawling everywhere. Perhaps I should get his walker out from under his bed. 
This kid never ceases to amaze me. While he can be a typical 6 year old and pain in my butt he is still my hero. I'm grateful for all my kids that give me strength and purpose. Thank you to all those that have followed his story and have been there for our family. It means more then anyone will ever know. Helps keep the bad thoughts and emotions from sinking in too deep. I'm sure both he and I wish we never had to deal with any of this but we have learned so much and have grown so much. Again thank you all for your love, prayers and support.

Tuesday, December 11, 2012

Anticipated surgery...wasn't expecting it so soon :(


It's hard to believe my baby has spent more time without his leg then he has with his real one. It's been a crazy 3 years and we are now headed back for surgery. You can see in the picture how the ends of his Tibia and Fibula are both sharp and pointy. This was something we anticipated and will anticipate to happen again till he stops growing. Didn't think it would be this soon. We have chosen to do the surgery now so he can recover while the weather isn't as enticing to play in and he won't miss much school being off track. When we went to the Dr's he was complaining of it hurting on the bottom as well as on the sides. What most people don't know is with a prosthetic leg the weight isn't on the bottom of his stump its actually around the sides. So while we try to get a good snug fit that will hold him well and help him walk "normal" it is pushing his Fibula (the little one) into his Tibia which causes more discomfort. So we may be fusing the two bones together with a plate. Dr. Marci will decide that while she is in there.
I just wanted to Thank all of those that continue to support us and love my son and our family so much. The prayers, well wishes and happy thoughts really do mean a lot. And to our families that are always supportive and encouraging him and constantly loving us in the good times and bad.
I as a mom try to be as STRONG as humanly possible but I can't lie I hate that he will be off his leg again and have to have surgery. It stirs up so many emotions like anger, sadness, wish I would'ves and all that. But the strength I get from Karsen and our little family makes things easier to pull through. My husband for those of you that know him know he's very simple. He let's me cry through it with his arms around me and always says "Don't worry we got this he'll be ok and so will we. Nothing can stop him". So true!!! Thanks again for the love and support. I will keep ya posted on here and FB.

Much Love,
Nicole

Tuesday, September 11, 2012

Reflections...3 years later


Reflections...
It's crazy that we are coming up on the 3 year anniversary of one of the most life altering experiences for me and my family. I hate to bring up memories...but in reality that is what September is for me. While I love the change in season, a chance to wear my hoodie's and sending the kids to school I still feel an anxiety for this month. Between the original accident and a year after him breaking his leg I am grateful that we are doing good since then.
So many things have happened since I blogged last...
**Karsen is now on leg 7 and will be fitted for a new leg next week. He's growing up so fast people think him and his older brother Jaxon are twins!
**He finished up Private Kindergarten at Little Critters which he absolutely loved and was accepted into 1st grade by his amazing new teacher Mrs. Dangerfield.
**We held a Zumbathon this year in honor of Shriner's Hospital and all the work they have done for us. Thanks to all that donated we raised over $1000 for them and can't wait to do it again and raise even more!!! In the world of prosthetics that helps but so much more is needed :(
**Karsen also learned to finally ride his bike. He's still working on it but I'm grateful he is taking it easy.
**He's been able to meet some incredible new friends that struggle with the same amputation but they are all amazing who they are and what they teach us.
**Karsen has thankfully been very healthy and way happy. He's turning 6 on the 22nd and some days I feel like he's turning 10. He's so mature and smart...not sure where he gets that from but I'm proud of him.
He continually gives me strength everyday as I watch him be him. He goes to school with confidence. I worried so much about him entering school and kids not being nice. He told his teacher and class on the first day that what made him unique was not that he had a prosthetic leg but that he helped me do the dishes.
That kid makes me laugh everyday and when I look into his beautiful eyes I thank God I still have him...the memory of that nightmare will never fully go away but the joy of what it has done in our lives for the better makes it all so much better.
September is definitely a remembering month and I look forward to many more that are full of positive happy memories.

Monday, April 16, 2012

DANCE KARSEN DANCE ZUMBATHON

JOIN US FOR A ZUMBATHON TO RAISE MONEY FOR UTAH SHRINERS HOSPITAL FOR CHILDREN.
FRIDAY JULY 27th 7-8:30PM AT SHRINERS HOSPITAL IN SALT LAKE CITY.
$10 MINIMUM DONATION TO PARTICIPATE JUST CLICK ON THE DONATE BUTTON AND REGISTER NOW!!!
Kids 14 & Under can participate for a $5 donation :)

WE WILL ALSO HAVE RAFFLES AT THE EVENT FOR SOME GREAT GOODIES!!!

This Zumbathon is to Give Back to Shriners Hospital for all the work they do for so many of our children especially Karsen.
The Doctors and staff have done so much but definitely can use the donations.

Thanks in advance for dancing with us...

All my RUN KARSEN RUN FANS please consider switching it up a bit and dancing with us!! It will be like doing a 10

DANCE KARSEN DANCE ZUMBATHON

JOIN US FOR A ZUMBATHON TO RAISE MONEY FOR UTAH SHRINERS HOSPITAL FOR CHILDREN.
FRIDAY JUNE 1ST 7-8:30PM AT SHRINERS HOSPITAL IN SALT LAKE CITY.
$10 MINIMUM DONATION TO PARTICIPATE JUST CLICK ON THE DONATE BUTTON AND REGISTER NOW!!!
Kids 14 & Under can participate for a $5 donation :)

WE WILL ALSO HAVE RAFFLES AT THE EVENT FOR SOME GREAT GOODIES!!!

This Zumbathon is to Give Back to Shriners Hospital for all the work they do for so many of our children especially Karsen.
The Doctors and staff have done so much but definitely can use the donations.

Thanks in advance for dancing with us...

All my RUN KARSEN RUN FANS please consider switching it up a bit and dancing with us!! It will be like doing a 10

Wow It's been a long time...

It's been a while since I've updated Karsen's blog. So many things going on. Recently we went to Shriner's for a new leg. Karsen is growing rapidly which requires fittings every 7-9 months. Thank goodness his doctors up at Shriners hook us up with great designs and work so well with him.
I can't believe what a difference minor adjustments can make. I am posting a pic of all the many designs we've had and different "legs" he's had since that horrible day in September 2009. Karsen is a champ and acts as if nothing is different about him. He's such a smart little guy. We currently have him in Private Kindergarten (since his bday misses the deadline by 22 days) and we are very excited to have him move into 1st grade next year. He's also developed another kind of smart...a smart alec. He's a master at teasing and taunting everyone just to make ya made enough but then he laughs. He's quite a jokester. Just the other day he came in and told me he wished we had the old lawn mower. I of course asked why and his reply was "so we could cut off my other leg then I could walk anywhere and not get thorns in my foot." My 10 year old Jazmine and I looked at each other with a little shock in our faces and realized apparently he's not a fan of shoes. Crazy kid makes me laugh even with his insane sense of humor.

Wednesday, October 26, 2011

Meet Benjamin!!!

Meet Ben he is our new Friend as well as his wonderful family!! Ben was in a lawn mower Accident just like Karsen. He had a through the knee Amputation which requires a more complicated prosthetic and since he is only 4 and small it complicates it even more. He has a prosthetic but has no way to bend which will make it uncomfortable to walk not to mention what it will do to his hips.
HELP US RAISE MONEY FOR HIM TO GET A BETTER FITTING LEG!!!
You can Donate through Karsen's blog and all proceeds will go to their family to help them.
Help us pay it forward!! I know you all have a special place in your heart for our family help spread that love to the Steinfeldts!!

More details from his accident are below...

Never Thought in a Million Years...Time to pay it forward!!!

When Karsen's Accident happened we heard a statistic the there were 600 lawn mower accidents a year. Some similar to ours but some different. A little while back I received a call from Dr. Marci she called to ask a huge favor for Karsen and I to go to Primaries and meet a family that was now experiencing the same thing we were. My heart instantly broke and I agreed to go visit them that day. I tried hard to be strong and not cry and it didn't help that Rick wasn't home to go but the minute I talked to him I broke down and just cried. I would never wish this upon anyone and now here it is not far from us. The physical and mental heart ache is at times unbearable.
We went up and met with Ben who is only 4 and his parents Anthony and Eleisha...the similarity between our families and our experience was crazy. Anthony was on the lawn mower and Ben got knocked over due to some brake issues. His leg was severed as well but unfortunately due to lack of skin and from what Marci told me the issues we've had and many surgeries they decided to do a through the knee Amputation. Ben spent a couple days in the hospital and his recovery has gone well. He should have normal growth and they shouldn't have bone growth issues like we have but his prosthetic is going to be a lot more complicated and require more physical therapy learning to walk with it. Ben and his family are from Manti and came up for a fitting at Shriner's and after a long hard appointment they went home with no prosthetic and finding that he is too small for the knee part of the prosthetic. They just don't make them that small. He was refitted without the knee this past Monday but without the knee so he will have a stiff straight leg. Eleisha and Anthony are working with some specialists on making a knee part that will fit but as we know once you venture out of the limitations at Shriner's things have cost. Shriner's is incredible and we all love them but they are limited to what they can do. There is a fundraiser for Benjamin and we will be collecting through Karsen's website for their family to help with this cost as well as all the travel expense going back and forth from Manti. Please help our family raise some money for this family. We have been beyond blessed from all of you and your donations of time, love, help and money I'd love to show them the same support. Every little bit helps!!!

Thursday, August 18, 2011

Leg #4 and Still Growing...



It's been forever since I have updated but we've been doing pretty good. Karsen is still the champ he always has been and with sisters and a brother like his he stays active and happy. He's healed really good from his Femur Break but now our only concern is his fibula & tibia. He has grown so much the tibia is now almost as long as his fibula (it was half the size) and it's growing in pretty sharp and pointy. We went and got refitted for another Prosthetic so we can prolong surgery...It's been a year praying it will be even longer.
Karsen's attitude has been incredible and of course nothing stops him from getting what he wants. We've hit a few emotional snags. Some of the ones I feared...like "I wish I had my leg back" and the last one was "when I'm 10 will my leg have grown back". Unfortunately It's those moments that break my heart. Come to find out he was just being lazy and doesn't want to put his leg on. Nothing much more then that.
We've had a great year he's gone camping, swimming and 4 wheeling even went boating. Trying to keep him active and involved. We just recently went to Lagoon and after a couple hours of walking he was pretty worn out but had fun. He was on his old leg. This new one is awesome it has a Truper foot and helps keep his alignment straight. The Truper foot has little shocks in it to give it more of a real ankle feel. The minute he put it on it was a major difference to me how he walked. The hope is to keep him going running and riding his bike. Peter his Prothesis Dr up at Shriner's said he'd probably grow out of this leg in 6 or so months too.
The good side to his down time is he's retained a lot of knowledge and we are starting him early to Kindergarten (come to find out just like his Dr. Marcy). Excited to have him learn to read better and continue with his education. He wants to be a Dr. Like Marcy some day too!!
My goal and prayer is for this next September to be a great one and for Karsen to have health and strength and NO MORE ACCIDENTS!! We can't wait to celebrate his 5th birthday without a body cast!!

Friday, April 22, 2011

Feeling back to "normal"




I have been meaning to blog for a while but life has been crazy but great!!
The last time I blogged was when we were at a year Karsen had broken his femur and we were feeling has though we were taking steps back instead of forward.
Karsen really is a champ...he sat for 10 weeks in his spica cast having to go under to redo it and then when they took it off. He got it off right before Halloween and couldn't have been more excited.
After that we were back to rehabilitation. He wasn't able to put his Prosthesis on for 2 more weeks and after that it was limited. Thank goodness the one we got from New York fit but only after a few adjustments and only for a short time. At that time I was discouraged having spent the time and money to go out there feeling as though it was a waste now that his leg had been through so much more. We ended up going to Shriners and got a new fitting where we got his Scooby leg. Love working with Pete up there he has done amazing things for us.
The good news is with him having a amputated leg we can adjust his prosthesis to help his legs to be the same length. It's been quite the process but we have all grown so much.






We also have done some great things since the last post. We did the 2nd annual Run Karsen Run and thanks to some incredible friends for putting it together it wouldn't have happened. We wanted to do it as a pay it forward event and was able to give back to Shriner's. I am full of gratitude for everyone that attended and participated and especially helped put it together. As soon as Karsen broke his leg I was at his beck and call 24/7 considering he couldn't even go to the bathroom on his own. Rick and I took turns carrying and were very grateful he could pee in a bottle. lol. The event was amazing and we were able to donate to Shriners and help cover the emergency costs of his new adventure.
After that we just kept working on adjusting him to help make his leg fit more comfortably and so he can walk. It was a little frustrating for him to be limping all the time. He was doing so well before you wouldn't have even known he had a prosthetic but now it was painful to walk.
One day we were walking into the store and he told me his leg was hurting but he'd be ok because he could do it! His determination and independence amazes me everyday!!
Since then we have been living life and doing great. He has been going to preschool and plays like everyone else. I only have mini heart attacks on occasion when he goes outside and ends up crying. It's usually because his older brother is picking on him. He is a typical 4 year old and on occasion is catching up on the tantrums he didn't get to throw while he was 3.
He has managed to walk, run, ride his bike, hike & even jump on a trampoline.
I am so proud of him and all my babies for the amazing children that they are. The encouragement the give each other and the raised level of compassion they have for everyone.
We are so blessed to have great family & friends. I'm so grateful to be on the mend and past the HELL we have been through. We still will have day to day struggles but they are nothing compared to what they used to be.

Friday, September 24, 2010

One Year Later...

So today has been on my mind a lot. It's not really an anniversary or a celebration but to realize it's been a year. A year from hell I might add. A year of pain, heartache, fear, trials, challenges as well as triumphs, successes and love. It's is crazy to reflect the changes from last year to this year. Some things are the same but others are so different. I can't believe the change physically, mentally, emotionally and spiritually we have all gone through.
I don't necessarily like to recall the activities of that day and thanks to my Life Coach Nadeen Rawlings I am not physically reliving it every time I look at Karsen's leg. Through the worst reliving all I could think about was what if I would've gone further he wouldn't be here and then I'd really not know where I'd be right now. That painful thought doesn't come around as often. I do still wish it would've been the dog (not that I don't care for my dogs but if I had to chose well you get it right?)
When I recap and even reread through the blog I have concluded that Karsen has been put under for some sort of surgery now almost 20 times. He endured 10-12 of them in the hospital the 1st 2 weeks. He's kind of a pro now. He no longer freaks out and always wants a popsicle when he wakes up. One of the little things I love is that the nurses worry he won't wake up but the minute he hears my voice he does. He's also had to learn to walk 3 times and soon it will be 4 after his femur heals. I loved when he learned to walk as a baby but the real joy was seeing him walk to Rick last November and again in New York. The joy and emotions are overwhelming. To see him "normal" again.
I try my hardest to stay positive and not dwell on the negative selfish thoughts but the truth of the matter is they are there. I have learned again thanks to Nadeen that my coping method is something we develop as children and mine is to keep it all to myself put on a strong face and just keep moving. I realized that at some of the hardest times I couldn't handle being in the same room with Karsen for fear of losing it but I had to be within hearing distance if he needed me. I have cried many nights wishing my baby wasn't ruined. That he was whole again. I admit I became selfish focusing on taking care of his needs but also my own. Finding escapes that were unnecessary even if it was running to the store with no kids. Sometimes I get angry and wonder why the hell this had to happen. I do believe things happen for a reason and I've asked many times what am I supposed to learn from all of this and when I think I know we are hit with another "life lesson".
My heart aches when I see him struggle. We have let him figure things out and tried not to cater too much so that he will learn. He tries after cruising up and down the stairs to get me to carry him this one last time because he "can't put pressure on his leg" or so he says. It is hard to see him refuse to wear his leg and just want to sit there while everyone plays around him. I struggle a lot with the future, with rejection, ridicule and inability. Simple thoughts of going swimming in a public place and the gawking eyes. I have asked all the weird questions like what if he wants to play a sport and can't or what if the girls don't like him or are repulsed by him. It's such a stupid mind game I hate it.
The good news is is that each day he teaches and inspires me. Some days it is pure patience he teaches me (especially now that he is 100% dependent on me). One day in particular we were sitting in our large front room. I was reading something and Karsen and Jaxon were playing. Karsen had a little where's waldo timer from some fast food joint. Jaxon was running in circles and I challenged him to see how many times he could run through the kitchen, living room and back to where we were before the timer was up. Karsen said "yeah let's race". As I sat and watched I learned an incredible lesson. Karsen didn't have his leg on so he wanted to race on his knees not even crawling. I said ok "Ready, Set, GO!" they both took off and as they reached the doorway to the kitchen (maybe 4 ft from where they started) Karsen stopped as Jaxon hurried around and kept going. Karsen sat there with a scowl on his face. That nurturing part of me as a mother wanted to pick him up and tell him it was ok and give him loves while he was upset but the other part of me decided to stop and observe. As I sat there I watched that scowl and sad look of disappointment do something I've never seen anyone do. Most humans would instantly cry or whine that they aren't good enough or that they "suck". Well Karsen has every right to be angry and frustrated but within 60 seconds he did the exact opposite. He sat there for a few and then looked over at me and saw the timer on the floor and said "Jaxon do it again and I will time you" He crawled over picked up the timer and with the best attitude said "ok ready, set, go". WOW is all I could think. I have never seen a 3 year old do something like that. To change his attitude and find a way to enjoy the fun. It seriously made me wish I was more capable of doing that.
The other day Rick was talking to Karsen and the topic of the accident came up. If you ask Karsen what happened he will still tell you that mommy ran him over with the lawn mower (so much for him forgetting). Rick asked him what he was doing Karsen replied I was following mommy, Rick then asked why (when he knew he wasn't supposed to) he replied I don't know. Rick said why didn't you get out of there Karsen then told him I fell over and then mommy backed up. This thought is heart wrenching to me. To think of how helpless he felt and the fear as well as the pain. It's thoughts and moments like this that tear me down. That hurt the most to think about and again make me question WHY??
When Karsen received his Spica Cast he really didn't want anyone to write on it but one day I thought I'm going to write on the bar. I know we will at least keep that part so I wrote on it "Mommy Loves You" so every time he looks down he will be reminded. A couple days later we were going through each letter and he knows what it says and he told me I want you to put "I love mommy" after it. Being the emotional freak I have been lately just held him so grateful that he does. It sounds so silly but every time he says it my heartache goes away more and more. Every time any of my kids wrap their arms around me and tell me they love me it fills me up more then anything.
Karsen has already touched so many lives in the person that he is and the way he has fought through this. I know that Heavenly Father gave him to us for many reasons. I know that Karsen lived to make a difference. His spirit is that of an incredible one. He keeps our family focused and find gratitude in the little things. I can't tell you how grateful I am that he as a whole person has not been altered. He is still the fun, happy, joking kid he was before he just has a limb missing. Jazmine, Kyliane and Jaxon never cease to amaze me as well. They don't treat him as if he's an alien and they are so thoughtful. After Karsen had his cast put on Jaxon spent the whole morning sitting next to him watching movies, getting toys and even making him giggle.
The have all excelled in school being top readers, great at math and leaders in their classrooms. Jaxon is amazing at Karate. We have tried to keep their lives steady and have things for them since a lot of time and energy goes into Karsen's care.
It is hard to be down and boy have we been down but there are so many things that are positive to focus on. I can't say that I am the best at this but some days I tell myself we are better then this we can overcome this. This has been the hardest year for my life, my existence, our marriage, our finances, everything. But our conclusion is simple...At least we still have each other. We would give up all of our possessions if that meant keeping our family. I am so grateful that Rick still loves me. I know sounds weird but I've heard comments of husbands not sure they could forgive their wife or just simply they'd be so angry. He is my rock that holds me together when I am falling apart. Even though sometimes I hate when I am down and he tells me "it's all good we are gonna get through this" It makes me want to punch him in the face. But I realize what we have made it through this year and to be where we are now as a couple and a family I am positive things will work out fantastic!! (not sure it could get worse) We are fighters!! We are ROCKSTARS!! lol

Thanks again to EVERYONE that has helped us this last year. Through love, prayers, thoughts, friendships, donations, food, hugs, notes and positive vibes. It is you that has helped us to stay strong as well. It takes a village to raise a child so thank you all for helping me raise all 4 of mine to be the best most beautiful children they can be. I wish we knew how to show our gratitude more the everyone. Please know that we love you all and have the utmost respect for your love for us.

Friday, September 17, 2010

Karsen Happens!!

As we come up to Karsen's 4th birthday and 1 year from this horrific accident. We have planned birthday parties and events to celebrate the progress that Karsen has made. Unfortunately we have another 6 week set back.
I took Karsen with some friends to the park and he was playing on a seat that spins.
He sat down on it on our way out. I went to grab my water bottle across the way and heard a child scream "someone stop me, stop me, stop me!!" realizing it was Karsen I ran over as fast as I could to stop him. I was about 5 ft away when he pushed himself off. (Sure wish the two moms standing near him would've helped me out). After getting to him and seeing his leg in a weird position I thought it was just his prosthesis well I was wrong. The lady (standing near him) covered her mouth saying oh my gosh his leg. I assured her it was probably his prosthetic. I rushed over to my friends van taking off his leg while running and him screaming...that heartbreaking cry I heard almost a year ago. I knew something was so wrong. I got his leg off and then laid him down near the car to pull his pants off to get his liner off. When I pulled his pants off I saw his thigh swollen and thought to myself "Please no don't be broken". Unfortunately it was. We put him in the car and rushed to Riverton IHC where they took xray's and said his left Femur was broken. They then transported us via Ambulance to Primaries. Once we arrived there I told them to call Marci his Othopedic Surgeon to at least let her know. She called me while I was there and told me if I could get to Shriner's she could get me in right away if we wait at Primaries it would be 10pm. So my Brother's (who were there waiting for us when we arrived at Primaries LOVE THEM) found us a ride to Shriners. We finally got to Marci. Karsen was comfortable after 4 mg of Morphine and a splint. He wanted to go home and didn't like the description of the Spica Cast he overheard us discussing. I was and still am heartbroken. Our life yet again is altered. We were finally using his leg for everything. He had started preschool and now we are back to square one only to look forward to him learning to walk again.

His cast starts at his chest and goes to his calf on his right side and covers his whole amputated leg. He has an opening to go to the restroom (we've been using a bottle lol). This was the first time any of the doctors working on him had ever done a spica cast on an amputated leg. We now have to worry about his leg shrinking too much and growing improperly. We can make up for it if it does a little with a prosthesis but won't know till we get there.
This poor guy has been through hell. It took him about 24 hours to realize he is completely immobilized and has to depend on Rick and I fully for anything. It's going to be a rough 6 weeks for him but I am grateful for my amazing kids that are willing to sit and play with him. Nothing warms my broken heart then the sound of his laughter with his syblings & visitors.

Thank you Brandon & Tracy for being there for me at the hospital I can't tell you how good it felt to have warm embracing arms to hug. Thanks to Kara, Grandma Debbi and Tali for visiting and helping us (me) with so much. Warm reassuring hugs mean the world even if its partnered with a good cry. Thank you to everyone that has called, email and been there for us even friends of friends and family and strangers. Thank you all!!

NEW YORK!!





























After a long recovery we were invited to go to New York to work with Dr. Mike Joyce from Advanced Prosthetics. He is truly an amazing man and did great with Karsen.
We had a few hard spots and up until the last day I was really nervous we'd come home having wasted our time and money. We were running out of time and the cost to get out there was already so much. Thanks to my Mary Kay business I had the opportunity of earning the money to take us there. We didn't have it in our budget just to pick up and go so I am truly grateful to all my family, friends, team members & clients that helped get us there. Thanks to Dallin Larsen, Katy Larsen and Mike Joyce from MonaVie and the M.O.R.E. Project for also helping us get there and get home ;)

We first had a mold made and within 24 hours and getting him up and walking his muscles and leg reacted and grew so we had to create a new mold. We spent over 40 hours hanging out in his office and on the last day they had perfected it. We put Karsen's leg on with no fuss, no fight and no crying. It fit great. We then booked it to the airport and unfortunately missed out flight. So we got to spend one more night at Dr. Joyce's beautiful home. The hospitality of him and his family was incredible.

Dr. Mike Joyce and his amazing staff worked for hours creating a vacuum suction leg for him. We are so grateful for amazing people like these guys!! .

Thomas The Train




Karsen as The Honorary Conductor!!
We had a blast riding the train. Rick, Karsen & Jaxon all got to ride in the Engine. All 3 boys loved it!!
Thanks to Jennifer Day for nominating Karsen and to the great ladies from Good Things Utah!!

Saturday, July 17, 2010

Before & After

This is the way Karsen's leg looked before the expanders. You can see the tip of his bone (The white part). The Skin and bone are attached and would not allow any movement which caused blisters and pain when he wore his Transformer leg.

This is the front side.

This is his leg with the Expanders stretching the skin around it so that we could have it reconstructed by taking the skin graft off completely.


This is the results of his long awaited reconstructive surgery. They shortened both bones and took off the skin graft. It looks and feels so much better.


Front side again. Crazy how much they took off but Thankfully it is still at a great length for his New Leg!!

We are leaving Sunday July 25th to take Karsen to see Dr. Mike Joyce from Advanced Prosthetics in Manhasset, NY to get him a new leg that will enhance his performance. Through many blessing and miracles (and the love and support of so many) we are looking forward to him walking again and riding his bike.

Much Love!!

Tuesday, June 8, 2010

The expanders are coming out!!

Tomorrow is the big day a day we have all been anticipating. A while back we realized that Karsen's Skin Graft was sticking to his bone and causing discomfort and scabbing on his leg which made wearing his prosthetic painful. We then put in 2 expanders to help stretch out his good skin to eventually go in and reconstruct the whole thing. Well Wednesday is the big day. They have scheduled him to be at the hospital at 12:45pm which means hungry baby all day. He can have clear liquids like Sprite or Apple Juice. My awesome assistant understanding the stress I'm under went and ran to get me some for him. (They are buds and love each other). I've been scrambling all over trying to get kids situated and Rick's in Vernal working so it's been a lot.
I've been looking forward to this surgery and anticipating it but for some reason I am feeling blah about it. Not sure if its worrying about the outcome if this is the final surgery for a while...Will this really work...How long will it be before he's back on his bike or walking...nervous about staying at the hospital...hoping to not have any triggers that bring it back and take me to that bad place in my head and heart. It's the little things.
The two pictures show the before and after of the expanders. The skinny one shows how his leg looked before we put them in and the other one shows them full. They will take out the expanders, pull off the graft, shorten the bone, then pull the skin all together to create a much better looking leg. This I'm excited about because as you can see it's nasty looking. It makes people feel uncomfortable including me. But I do like to rub it for him to make sure it's not hurting. There will be 2 doctors working on him one (Marcy) to do the stump revision (bone shortening) and then *Faizi will do the reconstruction of the skin. He's the plastic surgeon. Through it all I pray it looks better and feels better.
I will keep you all posted on the outcome...as for now keep praying for him to continue to have Superman strength and his amazingly positive attitude. Love my little Monkey he is the Best...He even said so himself (after he told me I was) lol.

Sunday, May 16, 2010

Karsen gets named Honorary Conductor with Thomas the Train


A good friend of mine sent this letter into Good Things Utah to nominate Karsen as an Honorary Conductor for the Day out with Thomas.

Hi-

I am not nominating anyone in my family, but would like to nominate the little boy of one of my girlfriends (the picture I attached I got off of their blog). His name is Karsen Mery and he is three years old. I don't have a picture of him in a conductor hat. I wanted to to do this without them knowing, but I thought this little guy's courage, as well as his family's, needed to be recognized. Back in September, just days after his third birthday, Karsen was in a horrible accident. His family had a ride on lawn mower, and his mother didn't see him behind her when she backed up, hitting Karsen. The lawn mower cut off his leg at the knee. He has been through many surgeries, and has had to learn to walk again. His mother has been trying to learn to forgive herself, and the family has been in the process of healing. Karsen is an amazing example of courage and determination. I'll never forget the day I watched a video of him walking for the first time after the accident (with the help of a walker), or watching him struggle getting up the stairs, but so determined to do it and to do it on his own. He is a little hero. I believe the opportunity to be the honorary conductor would mean a great deal to his family, and be a wonderful thing for this brave little man. They do have a blog that they update, specifically about Karsen and his conditions (he just recently had another surgery): http://karsenmery.blogspot.com.

Thank you,

Jennifer Day


She then called me to let me know that Karsen was selected and that they wanted us to appear on Good Things Utah on May 14th. I was very excited but concerned if he could do it because Thomas is here over Memorial Day weekend and Karsen is having his reconstructive surgery on that Friday May 28th. Having my dates confused I was happy when I found out they wanted him there on Thursday May 27th at noon to kick off the event. It works out perfect with his surgery on Friday he will not be able to do much for a little while. He has 6 weeks to heal before he can start fitting for a new leg.

We had fun meeting the Ladies from GTU they were so awesome. If I can figure out the video I will post it. Karsen was shy and terrified of Sir Toppem Hat so hopefully he'll be ready to yell "All Aboard" when he rides the train.

We'd love for anyone to join us for a Day out with Thomas.

Wednesday, April 7, 2010

Expanders...



I know it's been a long time and many people have stayed caught up with Facebook but I thought I would explain exactly what we are doing with Karsen's leg. When we did his first surgeries we did a skin graft. The skin took well but has not healed the greatest. The skin graft is stuck to his bone (you can see in the picture). So we are doing skin expanders, they are little bubbles (almost like implants) that have ports where they gradually fill with saline to expand or stretch out the skin. The purpose in doing this is to help create more good skin so that we can completely reconstruct his leg and get the skin unstuck from his bone.This picture is after we put the expanders in...

Its quite the process. We had the first surgery to put in the expanders then we went in a couple weeks later to have them filled. The top one was filled and then they couldn't find the port for the second one so he said we needed to go in surgically and find the port instead of poking around to find it. We scheduled it for the next day (which was today).

Surgery day...They called to schedule the surgery for 10:45 so I planned to go to Harmony with my girls (it's their school singing group I choreograph for). Then went to a Zumba class (there is no better therapy then a fun workout). I got home hurried and got ready and off we went. On the way there I said to Rick "you didn't feed Karsen this morning right?" he said "um yeah he had cereal why?" Well he wasn't supposed to eat after midnight. I didn't tell him that so of course I can't get mad. When we got there they got us prepped in like record time and then said "they are ready for him we just have a few questions...when was the last time he ate?" I told them 8 and they said oh ok and low and be hold they wanted to have him not have eaten for 6-8 hours. Which put us ok for surgery at 2. It was 11:30!! So we went to the play room/pre-op area and hung out. Didn't find the video games till 2:30. 3 hours of just sitting there...
about 3:30 they came and got him took him back and what seemed like forever he was done and awake at 5. What I loved was that he didn't whine once. He pretty much knew exactly what to do and when. He didn't even need versed (sp) a calming drug to go back for surgery and when he woke up he just wanted another popsicle. He was seriously amazing!! A walk in the park.

Here is how his leg looks today. It is going to get bigger over the next three weeks and then we will do a complete reconstructive surgery on May 5th. It is so gross looking but we know its for the best. Just counting down the days to his reconstruction!
My goal is by the time he is healed from this all to take him to Dr. Joyce in NY to do a Vacuum prosthetic. He has offered to help us it is just the cost of getting out there. My personal goal is to earn it by doing Mary Kay parties. So if you want to help and want to party let me know. I have some new fun things I am doing... from glamour makeovers to pedicures.


I just want to make a side note to everyone for the thoughts, prayers, notes, messages and food. You have no idea how much it helps. I have to admit that sometimes dealing with his leg and being at the hospital and whatnot I struggle. I have triggers that put me in a bad place mentally. I know it's not my fault but I can't help blaming myself. I am thankful for his strength because when he cries or I see him struggle a flood of guilt comes over me. I know that we are to learn something and that everything happens for a reason. I am grateful for my faith in the Lord and for the training I have had. Somedays the only thing that keeps me going is my family and my business with Mary Kay. My team is counting on me to lead them and I can't do that if I am down all the time. Believe it or not Rockstars you lift me up big time thanks for needing me!!

Thanks again to everyone for the continued love and support it means the world to us!!

Wednesday, March 3, 2010

Sometimes you have to step back to move forward...

So today I talked with Lindsey at Dr. Siddiqi's office and unfortunately the next available appointment to do the surgery isn't till the end of April so we are still going to do it on March 17th.
I asked for a later time so I can still go to Harmony (our school singing group I co-choreograph for) Big Buddah from Fox 13 is coming to see us we are the "Cool School of the Week".

I am nervous about the surgery they will be putting a "bubble" under his skin to help stretch it out so that we can take off the skin graft entirely and so that it won't stick to his bone anymore. The hardest part is it means no prosthetic till it's fully healed which is at least 8 weeks after this procedure. He will go in 2 weeks after to have a little saline put in it and then once a week for 5-7 weeks. I'm not excited but I know it's what we need to do.

I worry because days like today he's been outside, upstairs, downstairs, all over in his prosthetic (and hasn't complained once). It makes me sad to know all through Spring he will not be able to ride his bike or run around. I know I'm a whiner but he's 3 and that's what he should be doing.

On top of that work for Rick has been slow and hopefully will start to pick up. We are looking to have him do a Walmart in the middle of April which takes him (most likely to Texas or the midwest) for 8 weeks. Doing a Walmart will help us get back on our feet and try to get ahead. So it's single mom-hood for me. AND I am working my Mary Kay business as well. It is something I absolutely love doing and it has helped us so much financially through these last few months. Not to mention mentally too. Never thought I'd be so grateful for selling "lipstick" in my life but when it buys the groceries and pays the bills that we can't pay it's so worth it. I am working on doing big things with my business to better help my family out of the hole we are in. If you are a working mom you understand how that feels. (So if anyone is looking for a consultant and would like to help me reach my goals email me...nicolemery@marykay.com I'll tell you how you can ;)).

Plus I am training to run the Ragnar Relay in June and possibly riding the MS ride (gotta get a bike first lol). I know I do it to myself but that's what happens when you love your family, love your business and have a love for working out and being on a team.

We'll just ride out these next few months one day at a time. What doesn't kill us will only make us stronger. Please keep my little hero in your prayers so he can have the strength to overcome. He has no clue what's going to happen yet. Not sure how to tell him.

Sometimes you have to step back to move forward...